[tri-med] Re: Morgan update

>>>>>>>>We have been busy, busy, busy the last couple of weeks.  About 1
1/2 wks.
ago Morgan had his esophagus stretched again.  Everything went very
well,
he was stretched the most he has ever been and things looked good from
the
last time.  The dr. was so sure that the biopsy this time would come
back
positive for reflux that when it didn't she even went to the lab to look
at
it herself.  She claims that all kids who have had t.e. fistulas have
reflux.  You just can't prove it by Morgan.  I guess now she can say,
all
kids except one.  LOL<<<<<<<<<




glad to hear it, love to prove the doc's wrong!



>>>>>>>>On Fri. night we went to Dora the Explorer Live.  Oh, how fun
was that?! 
We were in the very front row.  We only managed that because that is
where
all the wheelchair seating is.  Morgan had a blast! He was dancing and
laughing, it was really fun.  He loves to watch the cartoon Dora so I
thought he might like this show.<<<<<<<<<


glad he loved it, we took Rebecca to see the live production of the lion
king as we got the tickets from easter seals, I think she liked it but,
she wanted to help out with the monologues ! 

  

>>>>>>>>>We had school conferences a couple of weeks ago, too.  Morgan
has nearly
met his communication goals for the entire year already.  We are
thinking
about new ones now.  We love the speech teacher at his school.  She is
in
his classroom nearly everyday.  He is progressing nicely in his other
areas, too.  At the meeting his teacher told me that the p.e. teacher
had
been approached by an engineering class at Iowa State University about
using Morgan as a research model in creating a holder for pencils,
markers,
crayons, etc. for kids with special needs.  I okayed it and they have
already come and made molds of his hands and taken pictures.  When it is
finished Morgan gets to keep it!  <<<<<<<<<<


wonderful to hear! Sounds like the school is really working with you



Don't fight with dragons, for you are crunchy and good with Ketchup.

Susan mom to Rebecca trisomy 18 moasaic age 12 and Mark LD/ADD age 11.
wife to Glenn
Ontario Canada




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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