[tri-med] Re: Missing teeth survey

Original Message -----
From: <TRIER9@xxxxxxx>
Subject: [tri-med] Missing teeth survey


> Can I please get families with Triers that a missing permanent teeth to
write
> in? Our local Regional Center claims 'missing teeth' is not related to
> Trisomy.

Hi Laurie :o)
I haven't ever known anyone who's child has/had missing teeth which makes me
believe that it's maybe not so common in the general
population...BUT...Devon has at least one missing tooth...so I believe it
most definitely could be connected to the trisomy 13. I've said it
before...there are no coincidences!!! When Devon was a baby and his teeth
came in...he was always missing 1 of the 4 bottom teeth that are the flat
ones between the pointy bicuspids. There have been 3 there....very tiny and
with lots of space between them. Now...as Devon has many of his adult
teeth...the same one on the bottom is still missing and there is still space
between those teeth!! And one of the 3 tiny ones (on the bottom) that ARE
there, one is VERY pointy....not flat like the other 2. Wierd???
Maybe....but no coincidence in my opinion :o) Hope this helps in some way
:o) Good Luck!
Love,
Penny...devoted wife to Joe and "Mom" to Nick (11 1/2 yrs...lover of Harry
Potter, Pokemon, Fishing, Legos, Zelda, Popcorn Chicken, Pizza, cheese
sticks and chocolate icecream w/ovaltine sprinkles) and "Mommy" to Devon
(AKA-Stinky Boy, The Chief or Devonrude...Lover of Bear, Elmo and the
Muppets, Stuart Little, Barney, Blue, Pooh and Co. and food in general, 7
years old (6-15-95) !!! Full Trisomy 13 w/balanced translocation 5 and
13)... KC (the feline child...Brat gained her kitty wings 7-09-02 she was 16
years old +), Snitch and Lil' Dude (Nick's turtles :o)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!
And last but not least, check out the homepage I made!
http://www.geocities.com/penvic4/Penny_sPage.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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