[tri-med] Re: Microcephaly


>Philina had this, and at one point there was a concern that the suture
>lines in her skull might have closed up prematurely, which would have
>caused exactly what you are describing.  We had to get an x-ray done
>of her skull to check it out.  If it had of closed they would have had
>to operate, and open them back up to allow her brain to continue growing.
>Fortunately although they had closed up, they hadn't sealed, so she still
>had growing room.....

Thanks Fawna,

I am going to the doctors soon for Chris as he is still suffering
from headaches, earaches, toothaches etc.  Chris has never been diagnosed
with microcephaly, he has never been examined head to toe and had his
ailments listed.  Looking at him you can tell.  He has a little head on
his beanstalk body.  I am just trying to get them to do a cat scan or X-ray
to find out the cause of his pain.  Easier said than done.  I am just trying
to arm myself with info.  His moods and tempers are getting worse where he
is
hitting himself on the head daily.  I know something is going on but can't
put my finger on it.  Hoping to have more answers today.  Fingers crossed.

Thanks

Kristy, Mum to Chris 10, PT 18, Coby 8, Blake 3, Taleah 2.
And always suffering wife to Phill!!!!
Perth Western Australia

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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