[tri-med] Re: McKyla Kay

Our prayers are with Kylie and with the family! Thanks for sharing this
information with us.

Ruth, wife to Rudy, mom to Brendon (19), Scott (17), Joshua (13), Matthew
Rudy
(Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
http://members.cox.net/t18mom

Lord as I face each new day, grant me power, perseverance, patience and
peace.

> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of JMSK8RPRO@xxxxxxx
> Sent: Friday, February 25, 2005 2:40 PM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] McKyla Kay
>
>
> I have talked with the mom of the baby I mentioned yesterday.
> She has given permission for me to share information.
>
> McKyla (Kylie)was born Sunday Feb 13 in a smaller town hospital.
> She is about 4 weeks early.  Weighed 4lbs, 6oz and 16 inches
> long.  She began having apnea events and was put on a vent.  Then
> transported to our hospital.  About 2 days later they received
> the inital information that she was full T-18.  I went to see her
> on Wednesday and she was off the vent an on C-PAP.  The parents
> were overwhelmed with information and had basically prepared
> themselves to not take her home.  The wanted her to stay alive
> long enough for out of state family to arrive and see her.  The
> were taking her off C-PAP last Friday or Saturday.  They expected
> apnea events to take her within hours.  Well, that did not
> happen.  (Aren't these little ones full of suprises!!)
>
> She is on 1/2 liter nasal cannula and SATing around 90%-95%.  I
> stopped today and they were trying to wean down the 02 but her
> SATs were in the low 80's so they bumped her up.
>
> They are taking her into surgery on Monday to place a g-tube.
> She was taking some formula by mouth then finishing by OG tube,
> but the bottle was stressing her out too much.
>
> I am not sure of the exact heart issues, but they seem to be
> severe.  The family is so overwhelmed with the medical terms that
> mom could not explain the heart issues to me well enough for me
> to understand them.
>
> I just wanted to ask for prayer for Kylie especially on Monday,
> and for her family.  As I get more information, I will pass it
> on.  Hopefully the family will eventually joint the list and keep
> you up to date themselves.  Also, they can ask questions on
> issues I have not experienced.
>
>
>
> --
> Jackie, mom to Tina 13 yr, Tony 11 yr, Philip (Full T18) ^!^
> 9/20/02 @ 6 mo
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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