[tri-med] Re: Lutein & light sensitivity

We get buy the capsules with power in them-the geltabs with liquid are
messy and turn everything yellow!  We just break the capsule apart and
add it to her 6 o'clock feeding (she has a g-tube and we feed her
Pediasure).  We give her water before her feeding and tried it with
that, but it seemed to upset her stomach.  She does fine now though.
It's green with yellow and red specks and it looks like we put seasoned
salt in her Pediasure!  It's pretty icky looking, but she doesn't taste
it so it's ok.

Jennifer, mom to Elanor-3 1/2, full T18; and Arwen-5 1/2; caregiver to
Joe-25 cerebral palsy & spastic dysplasia; wife to Andrew-32 and
wonderful! 
Boise, Idaho USA


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
On Behalf Of Ruth
Sent: Friday, August 29, 2003 10:50 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Lutein & light sensitivity

> I guess the sneezing is a reflex that everybody has.  It is stronger
in
> newborns, but I know I still sneeze when going from the dark into the
> sun too.  The theory behind lutein supplements is that your typical
diet
> includes leafy greens and other veggies and fruits that contain
lutein.
> It is a nutrient our eyes use as a filter.  Our kids are usually
eating
> mostly or only Pediasure or other formula, and aren't getting the
lutein
> from veggies.  We talked to number of parents at the conference who
> supplement, and a lot of kids didn't even need sunglasses outside.  I
> guess there are a couple of different products (I think "Green's
Greens"
> is one, but we just get lutein capsules.  They contain only common
plant
> extracts (marigold, spinach, blueberry, rosemary, bilberry), some
> vegetable oil and citric acid.  I figure that none of those can do any
> damage if it doesn't work (which I think it is working).  I found a
> website that goes into a little detail about lutein and the macula of
> the eye:
>
> http://dreampharm.com/Item/115.htm
>
> I'm sorry if I'm running on a bit, but I am really excited about the
> possibility of taking Elanor outside without sunshades, hats,
sunglasses
> blankets, and sneezing/gagging/spitting up!
>
> Jennifer, mom to Elanor-3 1/2, full T18; and Arwen-5 1/2; caregiver to
> Joe-25 cerebral palsy & spastic dysplasia; wife to Andrew-32 and
> wonderful!
> Boise, Idaho USA


Jennifer....once again, thanks for the information! How do you
administer
the capsules to Elanor?

Ruth mom of Matthew (Full t-18, will be 2 in September 2003), Brendon
age
18, Scott age 15 and Joshua age 12. Lake Forest, CA
http://members.cox.net/t18mom/

"The more you count your blessings, the more blessings you have to
count!"


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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