[tri-med] Re: Luke Update

On Saturday, October 23, 2004, at 02:21 PM, Fawna Lockwood wrote:

>>  I know a lot of our kids have severe problems, but have any
>> on the list had to remain in the NICU/PICU for that long
>> after birth?  Even if they have severe issues?
>

> Seems to be far more of a European thing.

That's kind of the impression I've been getting....
>

>  Mom was already pretty stressed
> out as it was.  And obviously if they couldn't even safely move
> him to that other facility, she couldn't very well take him home.
> So sometimes it's just not really realistic to take them home.
>

And that makes sense, too.

The whole issue makes me glad, though, that I live in the U.S. where it 
seems like parents are given the chance to take their kids home, and 
the help (more or less) to keep them going at home.  Of course, I 
realize there is the problem of kids being shuffled home who AREN'T 
ready--the whole trisomy "incompatible with life, just take them home 
and make them comfortable" syndrome....  Balance, balance, balance....

Loren (wife to Kraig, mom to Keren, T18, two years old (9/27/02))
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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