[tri-med] Re: Luke Update

This is all so disheartening--I can't even imagine being in Ruth's 
position....
One thing I've wondered, too, due to lack of information, is why Luke's 
had to be in the hospital for nine months.  I know a lot of our kids 
have severe problems, but have any on the list had to remain in the 
NICU/PICU for that long after birth?  Even if they have severe issues?  
It seems like there is so much help here (in the U.S.? in Michigan?) to 
get our kids home and care for them there (hospice, etc.).  Am I naive 
about this?

Loren (wife to Kraig, mom to Keren, T18, two years old (9/27/02))
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075


On Friday, October 22, 2004, at 11:34 AM, Karen wrote:
> I havent spoken with Ruth directly - I have been talking with her 
> solicitor
> (lawyer). I have offered mine/our help if she decides to pursue 
> treatment
> overseas. I suspect however that the court order may prevent her from 
> doing
> that. I dont know the finer details but Luke may have been made a ward 
> so
> that the court order can be enforced. That may prevent them from 
> seeking
> help outside the country.
>
> It may also be a case that its simply too late and the pulmonary
> hypertension is now irreversible. If he needed the surgery at 5 weeks, 
> now
> that he is 9 months it may well be too late. (hence why the doctors are
> saying he only has weeks to live) Getting him to the too late stage is 
> part
> of the reason behind the delaying tactics.
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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