[tri-med] Low blood sugar

Hi, I'm new here. I had a little boy, Caleb, on July 8 with full T13. He is 
breathing well with oxygen, and his heart has a small VSD and a small ASD. The 
cardiologist said she was not too concerned about his heart. An MRI of his 
brain showed Dandy Walker syndrome. 
My question is related to low blood sugar. The Docs are recommending that we 
stop giving him added sugar because it is probably a function of his liver and 
they think it will eventually fail. They have him on a continuous feed will 
added dextrose (2 ml to 60 ml formula) in order to keep the sugar up. When he 
was on 3 hour feeds, his sugar got too low in between feedings. On continuous 
feeds, his sugar ranges from 55-66.

If anyone has any experience with low blood sugar, I'd love to learn more. 
The docs said they never sent anyone home with sugar in their formula. I may be 
oversimplifying the situation, but it seems to be pretty simple to me. 

Thanks for your advice and ideas.

Becky


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