[tri-med] Re: Losing weight


-----Original Message-----
>From: Bdancho@xxxxxxx
>Sent: Jul 17, 2006 11:27 PM
>To: Tri-Med@xxxxxxxxxxxxx
>Subject: [tri-med] Losing weight
>
>I just posted the other day about low blood sugar. Now we're on to a new 
>obstacle. Caleb (full T13) will be 10 days old tomorrow. He is still losing 
>weight. We know that there are issues with his liver and kidneys (although I 
>was 
>told neither are failing yet). The doctor said that he suspects an electrolyte 
>imbalance of some sort and that any testing to determine what is going on 
>would 
>be too invasive and he recommends that we bring him home from the NICU and 
>just let things be. 
>Has anyone experienced difficulties with early weight gaining issues? The doc 
>says he's already on more calories than a baby of his age should be. 
>
>Could this really be the end of the road for us already? I feel like I am 
>just giving up on him if we don't investigate the cause. 


Becky,
Mari lost weight her first 10 days in the NICU for sure even though we were 
tube feeding her after bottle feedings.  She did do better at home.  But I sure 
push them to do the testing.  I always figured then I could rest assured 
knowing that I'd done everything possible for my child.
Please keep up posted, dear.


Chris (mama to Mari, full T18, dob 8/24/01)
Tipp City, OH  45371
http://pg.photos.yahoo.com/ph/misstippcity/my_photos
http://home.earthlink.net/~loganfamily/id1.html
http://www.benotafraid.net/story.asp?id=38
http://web.coehs.siu.edu/Grants/TRIS/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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