[tri-med] Re: Little Baby Boy

YES... we will keep you, Alex and Baby Zach's family in our prayers.
I'm forwarding your email to family so others will do the same.

This is amazingly sad... and I can see it all happening to Claire if we 
hadn't found this group, and got information from folks like Kam's mom and 
Faren's mom... who were so positive and supportive, and showed us that with 
love, we could at least meet her and give her a chance.  Who knew that 
she'd still be here a year and 1/2 later, and smiling, and gabbing... and 
reaching for toys... and cute as a button.
If we listened to some of the drs, she would have not been allowed to make 
it to term. <snif>
Like all of you, I wish there were more we could do to get some hope out to 
moms like Baby Zach's.  We do what we can, with what time and talents we have.

Debbie, mom to Baby Claire (full T18 and 18 months old)
http://www.debbwebb.com/Claire/
"Trying to reason with Hurricane season", Jimmy Buffett

At 10:47 PM 9/23/2004, you wrote:

>I received a telephone call this morning regarding a little baby boy who 
>has T-18 and whose mum only lives a suburb away (we share the same GP). I 
>gave the aunty all the literature and we discussed getting Zach put back 
>on feeds (they had withdrawn food and were only giving him maintenance 
>fluids 4mls and hour) and withdrawing the morphine the hospital were 
>giving him because he was having apneas. But before she could get to the 
>hospital the little one passed away.
>Could I beg all those who are so inclined to say a prayer and keep this 
>family in your thoughts. Some tough times ahead.
>And also for me - this has all happened at the same hospital in which I 
>had Alex. And they stuffed up all the same tests that they did on me 
>(which is why I am trying to sue them) with this mum, meaning of course 
>that they havent learnt a THING in 10 years. Plus I get my hackles up when 
>they withdraw food saying that feeding our kids is only prolonging the 
>inevitable. I know not everyone agrees but I believe that housing, food 
>and love are prerequisites and every childs right in a modern country. I 
>also have issues with giving morphine because the baby had "T-18" not for 
>a valid medical reason, especially when the little one is having apneas. 
>My problems, not this mums........... At least they treated the mum a 
>little better than they did me.
>
>Thankfully I did talk the Aunt into calling into Centrelink BEFORE she 
>came to my place and lodging the disability forms so that she could claim 
>funeral benefits and the like. (you have to lodge them while the child is 
>alive to get them - she made it by an hour). Sometimes I get so mad at the 
>system and the unfairness of life.........
>
>Love many, hate few, learn to paddle your own canoe.
>   -- American Proverb
>
>Keep Looking For Rainbows!!
>    _--_|\
>  /Karen \
>  \ _.--._ /
>           v Karen, Mum to Alex (10 years, T-18 Mosaic)
>http://members.optushome.com.au/karens
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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