[tri-med] Re: Little Baby Boy

As much as I still have to pick my chin up off the floor when I hear =
such
things I know I have experienced it to some extent too.  I know in my =
case I
did my research on the net to find out what they suggested to me was =
wrong.
I was very strong and in their face that Logan would not be treated like
that.  I had to fight the entire 129 days in the NICU for Logan to =
receive
proper medical treatment.  I do know that if I would have backed down =
even a
little bit they would have run all over me and treated Logan the same =
way
(prolonging the inevitable).  I hope Karen is able to reach the parents =
and
talk with them.  Tina

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of Richard Carlick
Sent: Monday, September 27, 2004 12:32 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Little Baby Boy

Karen this story just sickens me to the stomach.  That poor family and =
that
poor little boy. It makes me so pleased that we have moved to Victoria - =
I
have been assured by the Children's Hospital that Matilda will not be
treated like she was in NSW and that she will be offered THE very best =
care.
Down here we get our pediasure for free and a free feeding tube every =
month,
along with 2 new syringes - I have been washing and reusing syringes for =
as
long as I can remember.

I think this being election time that a bit of noise should be made =
about
this damn hospital near you AND what they did to that dear little baby - =
I
am very upset.  I can recall the first paed to see Matilda wanting to =
give
her morphine and Ryde hospital and our GP warned us not to - thank god =
we
have some caring people in the beginning.

Catherine, wife to Richard and mum to Matilda 5 (full T-18), Tom 4 and =
Ruby
4.5 months
----- Original Message -----=20
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
To: "Tri-Med" <tri-med@xxxxxxxxxxxxx>
Sent: Friday, September 24, 2004 12:47 PM
Subject: [tri-med] Little Baby Boy


> I received a telephone call this morning regarding a little baby boy =
who
has T-18 and whose mum only lives a suburb away (we share the same GP). =
I
gave the aunty all the literature and we discussed getting Zach put back =
on
feeds (they had withdrawn food and were only giving him maintenance =
fluids
4mls and hour) and withdrawing the morphine the hospital were giving him
because he was having apneas. But before she could get to the hospital =
the
little one passed away.
> Could I beg all those who are so inclined to say a prayer and keep =
this
family in your thoughts. Some tough times ahead.
> And also for me - this has all happened at the same hospital in which =
I
had Alex. And they stuffed up all the same tests that they did on me =
(which
is why I am trying to sue them) with this mum, meaning of course that =
they
havent learnt a THING in 10 years. Plus I get my hackles up when they
withdraw food saying that feeding our kids is only prolonging the
inevitable. I know not everyone agrees but I believe that housing, food =
and
love are prerequisites and every childs right in a modern country. I =
also
have issues with giving morphine because the baby had "T-18" not for a =
valid
medical reason, especially when the little one is having apneas. My
problems, not this mums........... At least they treated the mum a =
little
better than they did me.
>
> Thankfully I did talk the Aunt into calling into Centrelink BEFORE she
came to my place and lodging the disability forms so that she could =
claim
funeral benefits and the like. (you have to lodge them while the child =
is
alive to get them - she made it by an hour). Sometimes I get so mad at =
the
system and the unfairness of life.........
>
> Love many, hate few, learn to paddle your own canoe.
>   -- American Proverb
>
> Keep Looking For Rainbows!!
>    _--_|\
>  /Karen \
>  \ _.--._ /
>           v Karen, Mum to Alex (10 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: