[tri-med] Re: Little Baby Boy

hugs to mums and babies and big boys all around.  these are real 
children!!!!
jude, mom to derek-18, kelsey-16
and kameron-7-full t18
golden, colorado usa

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>

>I received a telephone call this morning regarding a little baby boy who 
>has T-18 and whose mum only lives a suburb away (we share the same GP). I 
>gave the aunty all the literature and we discussed getting Zach put back on 
>feeds (they had withdrawn food and were only giving him maintenance fluids 
>4mls and hour) and withdrawing the morphine the hospital were giving him 
>because he was having apneas. But before she could get to the hospital the 
>little one passed away.
> Could I beg all those who are so inclined to say a prayer and keep this 
> family in your thoughts. Some tough times ahead.
> And also for me - this has all happened at the same hospital in which I 
> had Alex. And they stuffed up all the same tests that they did on me 
> (which is why I am trying to sue them) with this mum, meaning of course 
> that they havent learnt a THING in 10 years. Plus I get my hackles up when 
> they withdraw food saying that feeding our kids is only prolonging the 
> inevitable. I know not everyone agrees but I believe that housing, food 
> and love are prerequisites and every childs right in a modern country. I 
> also have issues with giving morphine because the baby had "T-18" not for 
> a valid medical reason, especially when the little one is having apneas. 
> My problems, not this mums........... At least they treated the mum a 
> little better than they did me.
>
> Thankfully I did talk the Aunt into calling into Centrelink BEFORE she 
> came to my place and lodging the disability forms so that she could claim 
> funeral benefits and the like. (you have to lodge them while the child is 
> alive to get them - she made it by an hour). Sometimes I get so mad at the 
> system and the unfairness of life.........

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: