[tri-med] Little Baby Boy

I received a telephone call this morning regarding a little baby boy who has 
T-18 and whose mum only lives a suburb away (we share the same GP). I gave the 
aunty all the literature and we discussed getting Zach put back on feeds (they 
had withdrawn food and were only giving him maintenance fluids 4mls and hour) 
and withdrawing the morphine the hospital were giving him because he was having 
apneas. But before she could get to the hospital the little one passed away. 
Could I beg all those who are so inclined to say a prayer and keep this family 
in your thoughts. Some tough times ahead.
And also for me - this has all happened at the same hospital in which I had 
Alex. And they stuffed up all the same tests that they did on me (which is why 
I am trying to sue them) with this mum, meaning of course that they havent 
learnt a THING in 10 years. Plus I get my hackles up when they withdraw food 
saying that feeding our kids is only prolonging the inevitable. I know not 
everyone agrees but I believe that housing, food and love are prerequisites and 
every childs right in a modern country. I also have issues with giving morphine 
because the baby had "T-18" not for a valid medical reason, especially when the 
little one is having apneas. My problems, not this mums........... At least 
they treated the mum a little better than they did me. 

Thankfully I did talk the Aunt into calling into Centrelink BEFORE she came to 
my place and lodging the disability forms so that she could claim funeral 
benefits and the like. (you have to lodge them while the child is alive to get 
them - she made it by an hour). Sometimes I get so mad at the system and the 
unfairness of life.........

Love many, hate few, learn to paddle your own canoe. 
  -- American Proverb 

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (10 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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