[tri-med] Re: LVN nursing questions...

----- Original Message ----- 
From: "Wright"
> You're lucky you don't live in Illinois!

Or Australia,
I get zilch under any program for Alex and never have done. His intellectual 
disability is not severe enough and his medical problems "too severe" - so I 
have had to fight tooth and nail to get what I do get.

Currently I get one night a week of a registered nurse, however I cannot 
leave the house. I also get one day every three months when he goes to a 
respite house. All the other kids go for the entire weekend but Alex can 
only go for the day AND I have to find a registered nurse to attend with him 
(and pay for it of course). Seems its safer (tongue in cheek) to catheterise 
6 children 4 times a day, do tube feeds, lift and carry them than it is to 
MAYBE have to give Alex medication or respond to an anaphylactic crisis.

"It is not how much we do, but how much love we put in the doing. It is not 
how much we give, but how much love we put in the giving."
 ~ ~ Mother Teresa ~ ~

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (10 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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