[tri-med] Re: Keren's home from the hospital!

Hi Loren, great to hear that Keren is home and happy.  It's also great to
hear that she's playing with toys and doing more - I think our kids bounce
back from hospital stays better than us, don't you?!  Another strong little
possum.  Well done.

Catherine, wife to Richard and mum to Matilda 4 (T-18) and Tom 2

----- Original Message -----
From: Kraig Warnemuende <ad6075@xxxxxxxxx>
To: <Tri-Med@xxxxxxxxxxxxx>
Sent: Sunday, March 23, 2003 1:08 AM
Subject: [tri-med] Keren's home from the hospital!


> Hello all!
>
> We're home!!!  Actually, we got home Wednesday afternoon and let me
> tell you it was the most wonderful homecoming I've ever experienced.
> It was just so nice to have Keren back with us, to not be at the beck
> and call of doctors and nurses, and to not have Keren connected by
> wires and IVs to monitors and machines!!!  We're settling back into the
> home routine very happily.
>
> All aspects of the jaw distraction went well.  Overall the hospital
> stay was a good experience, despite the discomfort of room
> accommodations for parents....   We had wonderful nurses to work with,
> and Keren was able to get the pin arms (the ones in her mouth that
> stuck out so we could turn them and move her jaw out) removed before we
> came home.  The rest of the hardware will stay in about two months
> until her jaw is completely set, but that will require only an
> overnight for removal.  None of it shows--it's all internal.
>
> It's been so strange looking at our little girl with her new jaw!!!  In
> some ways she looks so different.  We're getting used to it really
> quickly, though, and it's so great to see her breathing easily and
> keeping her oxygen saturation up even when sleeping.
>
> Keren came home with the ng tube (nasal feeding tube) and so we're able
> to give the majority of her feedings through that.  She's still getting
> the hang of her new jaw structure, so to say the least she isn't
> getting very far on the bottle.   We'll be getting some instruction
> from occupational therapy as to how to strengthen her mouth muscles so
> she can get better at that.  Hopefully she won't get so used to using
> the tube that she won't try the bottle at all, 'cause we know she can
> do it and it will help her developmentally.  We're still going to go
> with a stomach g-tube which we can hopefully get at the same time the
> rest of her mouth stuff is removed.  We think we'll go ahead with a
> fundo, too, 'cause she's still spitting up a good bit due to
> reflux--and I'm so tired of always being careful that she's upright,
> upright, upright!!!!  She's getting to the point where she likes to lie
> on the floor and squirm and kick, but we have such small windows of
> "safe time" where she can do that....
>
> Well, I think that's the scoop!  Keren's been doing well since she's
> been home (she seems much happier than she did at the hospital).  We're
> noticing more little developmental steps--more smiling, more batting at
>   toys and interaction.  It's fun to watch and exciting, and a neat
> answer to prayer since we were a little afraid surgery would put her
> behind.  God is good!
>
> Praying for those who are still stuck in the hospital--I have much more
> empathy for you now! :)
>
> Loren (wife to Kraig, mom to Keren, T18, 5 mo. and counting! :) )
> http://webpages.eng.wayne.edu/~ad6075
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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