[tri-med] Re: Karen

Karen:  I thought you loved Texas because I lived here????
Glad to see you back in action, 

Nanci

--- On Sun, 6/21/09, Karen <karens@xxxxxxxxxxxxxxxx> wrote:

From: Karen <karens@xxxxxxxxxxxxxxxx>
Subject: [tri-med] Re: Denise - would some letters from parents help?
To: tri-med@xxxxxxxxxxxxx
Date: Sunday, June 21, 2009, 1:21 PM

----- Original Message ----- 
From: "Annette
> Also, try the Texas Children's Hospital website. I would bet that if 
> contacted the cardiologist would give professional opinions.

I am in Australia and have never been to Texas but I lovvvvve Texas 
Children's Hospital. Alex only has a PFO so no heart issues to speak of but 
he does have a pacemaker (his cardiac problems are neurological). Last year 
the cardiac team took a phone call from little old me in Australia about 
Alex's upcoming pacemaker surgery when the doctors here wouldn't / couldn't 
be bothered talking to me. They even faxed me journal articles about the 
particular issues I was querying - they are BRILLIANT and best of all they 
care about the kids they dont care about the chromosomes.

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (14 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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