[tri-med] Re: Justin update

yes taylor did. we didn't know he was doing it so we where thickening his
formula. we did that for a good 9 month and we did a swallow study and
taylor out grow  aspiration. right now taylor is choking on every thing and
taylor will some time throw up. so i'm going to see about seeing his doctor
again. it might be that its a habit for him or something to do with his
ears.i do not know gina son taylor. we found out with a swallow study  he
was aspiration we did that at 11 months  because taylor wasn't gaining
weight. right now taylor weights about 42 to 43 lbs. and is 39 inches tall.
at 6 months old taylor only gained 3 oz. so we did a stomach study and found
out that he had burning of the stomach  so he was put on medusa and did gain
weight but slowly. and when he gets sick and loses its so hard to get back
the weight. taylor will now get food and give to me when he wants something
gina
----- Original Message -----
From: "Jason and Belinda" <JayandBel@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Tuesday, October 26, 2004 5:09 AM
Subject: [tri-med] Re: Justin update


hi gina,
has he ever had any aspiration problems?
belinda mom to Justin t8 mosaic
----- Original Message -----
From: "ginaanderson" <ghulce@xxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Tuesday, October 26, 2004 12:14 AM
Subject: [tri-med] Re: Justin update


> taylor has wore glasses since he was 16 months old. crossing of eyes and
can
> not see close up. taylor has been on pedasure sine he was 11 months old
and
> still drinks it and will ask for it.taylor eats soft food and pediasure
gina
> son taylor triosmy 8 mosaic 4 years old
> ----- Original Message -----
> From: "Jason and Belinda" <JayandBel@xxxxxxxxx>
> To: <tri-med@xxxxxxxxxxxxx>
> Sent: Monday, October 25, 2004 11:33 AM
> Subject: [tri-med] Justin update
>
>
> Hi everyone,
>    Well, I took Justin to the doctor on Thursday, and he is doing really
> good. The doctor is wanting to consider taking him off of his apnea
monitor
> because he has had NO episodes in months,,,,,  Which makes me thrilled,,,
> but also a little apprehensive at the same time,,, I feel like it is my
> security blanket. The only things that they are a little concerned with
> right now is (1) his weight,,, he hasn't gained an ounce in over 3 months.
> So, they have taken him off of his formula and put him on 3 cans of
> pediasure a day at a minimum, and at least 2 jars of fude a day and at
least
> 8 oz of juice. They said that most of the problem is probably because he
is
> strictly g-tube fed, and he has the nissen, so we can't feed him an aweful
> lot at one time. So, hopefully, the pedia sure will help. (2) his eyes.
One
> has been crossing for a while so he has referred him to see a pediatric
> optimologist. But,,, I would have to say, even with these two little
things,
> the best thing of all is
>  that for the most part,,, HE IS DOING WONDERFUL!!!!!!!!!!!!!!!!  They
have
> decide to keep a regular check on his blood count from now on. They will
> test him every six months due to the high risk of acute myeloid leaukemia.
> They also have to check his thyroid levels very often which we just got
home
> from doing. Poor thing,, I just hate to see him being stuck with a needle
> all the time,,, but he does handle it well. Better than me most of the
time
> :)    So anyways,, I just wanted to let you all know how he was doing,,,
FYI
> his scope test is next week and so is his start of pt and ot!!  YAY!!!
>
> Heavenly wishes to all,
> Belinda mom to Justin (trisomy 8 mosaic)   and Destiny, Taylor, Jacob and
> Dustin
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: