[tri-med] Re: Justin update

hi gina,
has he ever had any aspiration problems?
belinda mom to Justin t8 mosaic
----- Original Message ----- 
From: "ginaanderson" <ghulce@xxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Tuesday, October 26, 2004 12:14 AM
Subject: [tri-med] Re: Justin update


> taylor has wore glasses since he was 16 months old. crossing of eyes and
can
> not see close up. taylor has been on pedasure sine he was 11 months old
and
> still drinks it and will ask for it.taylor eats soft food and pediasure
gina
> son taylor triosmy 8 mosaic 4 years old
> ----- Original Message -----
> From: "Jason and Belinda" <JayandBel@xxxxxxxxx>
> To: <tri-med@xxxxxxxxxxxxx>
> Sent: Monday, October 25, 2004 11:33 AM
> Subject: [tri-med] Justin update
>
>
> Hi everyone,
>    Well, I took Justin to the doctor on Thursday, and he is doing really
> good. The doctor is wanting to consider taking him off of his apnea
monitor
> because he has had NO episodes in months,,,,,  Which makes me thrilled,,,
> but also a little apprehensive at the same time,,, I feel like it is my
> security blanket. The only things that they are a little concerned with
> right now is (1) his weight,,, he hasn't gained an ounce in over 3 months.
> So, they have taken him off of his formula and put him on 3 cans of
> pediasure a day at a minimum, and at least 2 jars of fude a day and at
least
> 8 oz of juice. They said that most of the problem is probably because he
is
> strictly g-tube fed, and he has the nissen, so we can't feed him an aweful
> lot at one time. So, hopefully, the pedia sure will help. (2) his eyes.
One
> has been crossing for a while so he has referred him to see a pediatric
> optimologist. But,,, I would have to say, even with these two little
things,
> the best thing of all is
>  that for the most part,,, HE IS DOING WONDERFUL!!!!!!!!!!!!!!!!  They
have
> decide to keep a regular check on his blood count from now on. They will
> test him every six months due to the high risk of acute myeloid leaukemia.
> They also have to check his thyroid levels very often which we just got
home
> from doing. Poor thing,, I just hate to see him being stuck with a needle
> all the time,,, but he does handle it well. Better than me most of the
time
> :)    So anyways,, I just wanted to let you all know how he was doing,,,
FYI
> his scope test is next week and so is his start of pt and ot!!  YAY!!!
>
> Heavenly wishes to all,
> Belinda mom to Justin (trisomy 8 mosaic)   and Destiny, Taylor, Jacob and
> Dustin
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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