[tri-med] Re: Justin update

taylor has wore glasses since he was 16 months old. crossing of eyes and can
not see close up. taylor has been on pedasure sine he was 11 months old and
still drinks it and will ask for it.taylor eats soft food and pediasure gina
son taylor triosmy 8 mosaic 4 years old
----- Original Message -----
From: "Jason and Belinda" <JayandBel@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, October 25, 2004 11:33 AM
Subject: [tri-med] Justin update


Hi everyone,
   Well, I took Justin to the doctor on Thursday, and he is doing really
good. The doctor is wanting to consider taking him off of his apnea monitor
because he has had NO episodes in months,,,,,  Which makes me thrilled,,,
but also a little apprehensive at the same time,,, I feel like it is my
security blanket. The only things that they are a little concerned with
right now is (1) his weight,,, he hasn't gained an ounce in over 3 months.
So, they have taken him off of his formula and put him on 3 cans of
pediasure a day at a minimum, and at least 2 jars of fude a day and at least
8 oz of juice. They said that most of the problem is probably because he is
strictly g-tube fed, and he has the nissen, so we can't feed him an aweful
lot at one time. So, hopefully, the pedia sure will help. (2) his eyes. One
has been crossing for a while so he has referred him to see a pediatric
optimologist. But,,, I would have to say, even with these two little things,
the best thing of all is
 that for the most part,,, HE IS DOING WONDERFUL!!!!!!!!!!!!!!!!  They have
decide to keep a regular check on his blood count from now on. They will
test him every six months due to the high risk of acute myeloid leaukemia.
They also have to check his thyroid levels very often which we just got home
from doing. Poor thing,, I just hate to see him being stuck with a needle
all the time,,, but he does handle it well. Better than me most of the time
:)    So anyways,, I just wanted to let you all know how he was doing,,, FYI
his scope test is next week and so is his start of pt and ot!!  YAY!!!

Heavenly wishes to all,
Belinda mom to Justin (trisomy 8 mosaic)   and Destiny, Taylor, Jacob and
Dustin
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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