[tri-med] Re: Justin update

----- Original Message ----- 
From: "Jason and Belinda" <JayandBel@xxxxxxxxx>
>he hasn't gained an ounce in over 3 months. So, they have taken him off of
his formula and put him on 3 cans of pediasure a day at a minimum, and at
least 2 jars of fude a day and at least 8 oz of juice. They said that most
of the problem is probably because he is strictly g-tube fed, and he has the
nissen, so we can't feed him an >aweful lot at one time.

The vast majority of triers (regardless of flavor) tend to be slow growers
and small when they finally stop growing. Most have received the 'failure to
thrive' diagnosis along the way due to this.

Even at 17 years of age, Alex is the size of a 9-10 year old....and a
skinny/slight one at that!

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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