[tri-med] Re: Judging Amy

Okay, I finally posted to the bulletin board.
I know it says it's down, but my post went 
through any way.....

Peter & Gillian's Baby 
Okay, so yes, the woman was in total denial, but 
as she said to Peter, something like: "You're not 
going to steal my joy from me. If something is 
wrong with my baby, then I'll have the rest of my 
life to deal with it. But right now, I just want to 
enjoy my pregnancy." She was more "real" in that 
moment, then she's ever been on the show. 

Someone is doing an excellent job of writing these 
scripts. I'd like to see it continue, exactly as it is...
true to life for the diagnosis..... 

A couple of posts above I predicted the baby would 
probably look "normal". So this was no big surprise 
to me. It's just more very accurate true to life 
scenario for a low percentage trisomy mosaicism. 
Who ever developed this storyline, keep up the good 
work. The stage has been set beautifully. 

In response, the doctor commented, "I don't know 
how this happened, we'll need to run more tests." 
Maybe just the placenta was mosaic, but...Right now 
most doctors have never encountered a trisomy 18 
child, full or mosaic. They look in the literature, and read 
"Incompatible with life". And why wouldn't they 
believe it? It's what the literature says. It probably 
never even dawns on them that mosaic vs. full 18 
can be comparing apples & oranges, both fruit, but 
very different in flavor and texture. These children
not only can, and do sometimes live, they can also 
lead quality lives. Paige Barton (Trisomy 18 mosaic)
overcame adversity, got a college degree, and was 
a very vocal advocate for handicapped rights. Page 
died a few years back, in her 40's, but her efforts 
will live on. And that's why the Tracking Rare Incident 
Syndromes (TRIS) Project is currently being developed, 
to update the antiquated information available to 
doctors, educators, and families of children with these 
kinds of rare conditions. To read a tribute to Paige:
members.optushome.com.au/.../paige.htm 




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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