[tri-med] Re: Josefina

>My wife Monica and I have been registered and following posts to this list 
>for some time now after the birth of our daughter Josefina (1/1/06) who was 
>diagnosed with partial trisomy 6p right after she was born. 

Vladimir and Monica, 

Glad you finally decided to introduce yourselves!  Oh and I found that e-mail
address for the other 6p in your state and wrote her mom.  13 yr old Courtnie 
has done pretty well healthgwise since I'd last communicated with them, but is 
currently just getting over a recent bout of pneumonia.  She has slowed down
though somewhat in her development (currently 6th grade working at about a 
1st-2nd grade level) but does still continue to slowly make developmental 
progess.  I'll send you Kendra's e-mail off list, as she indicated that she 
would
very much like to be in touch with you too.


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya), 
Philina's Pharm Bengal Cattery, Escondido, CA USA
http://home.mindspring.com/~fawna33/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: