[tri-med] Re: Joanna's Bipap - Julie

Ouch, what a bad Mom I am.  Don't know degrees, she was last measured at 
least 3 years ago.  What I do remember is that progression had slowed after 
initial puberty rush.  I think that Jo's curve is definitely worse than 
Rebecca's, her kyphosis is not fixed as she can straighten up.  This was a 
clinic referral, and they told us it would be a 6 hour operation with 
incisions front and back with at least 6 week hospitalization.  All of our 
doctors and we decided that Jo would never survive this and just keep her in 
molded wheelchair.  Hopefully things have changed for the better in the 
operation, but not ready to explore the possibility at this time.

Chris H., Mom to Joanna T-18, 28 years

In a message dated 3/23/03 1:52:25 PM Eastern Standard Time, 
hardyboys@xxxxxxxxx writes:


> Chris what degree are Jo's curves?  Rebecca's scoliosis is at 25 degrees
> and her kyphosis is at 50 degrees, next step is a brace if the curves



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