[tri-med] Joanna's Aspiration Pneunomias

Hello Everyone,

       Sorry I seem to live in deep lurk these days, but Joanna's keeping me 
hopping!  We just got back from a week in hospital for another pneumonia, the 
second in 3 months.  She hadn't had pneunomia for many years so we were 
suspicious the first time, but this time everyone seems to feel it was 
aspiration, in spite of feeding tube.  We are getting 
cough/sneeze/mucus/spitup on a regular basis so must take some action.  We 
will have formal visits to specialists soon, but just informally the 
pulmonologist suggests that a trach might be least invasive control measure, 
gastro is switching Prilosec capsule we had been opening into food and giving 
orally to a liquid form, for time being - will contact neurologist for same 
switch of Jo's Depakote capsule tomorrow.  Jo's new school nurse, mother of 
handicapped child herself, suggests the simpliest solution so far, switching 
to a slow feeding pump rather than the bolus feed which may just be too much 
for Jo's stomach to handle.

       Any thoughts/experiences/suggestions would be most welcome.

Love to you all,

Chris H., Mom to freckle faced Joanna T-18, 27 years
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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