[tri-med] Re: Jeremiah Edward is eight days old

Heather & Trevor-
  Hang in there. I'm sure all the decisions are really tuff. Sounds like
you've been able to make some beautiful memories with your new baby.
Melissa's really grasping for all the hope and information she can get in
apticipation of her son's  birth the first of Oct. My computer's been in the
shop and she asked if there was any updates in Jeremiah. We're all praying
for him. Our little guy is forcing us to grow by leaps and bounds. As Jackie
suggested , Melissa's trying to enjoy the calm before the storm and try not
to anticipate every single thing. That does for sure make you crazy! Give
Jeremiah a love from us.
God's peace,
Love, LouAnn Bieck
mom to Melissa, 24 mom in law to Trent, Grammy to Maelin Ann, 2 & baby boy
T-13 due Oct.
also mom to Mick, 28 & T.J., 14

Heather Morgan wrote:

> First of all, thanks so much to everyone for your prayers and thoughts -
> they are appreciated.  We are taking things hourly and minutely at
> times, and as others have said, this is truly a rollercoaster.  Jeremiah
> has some jaundice and so Friday night we put him in a special
> phototherapy jaundice blanket, but took him out again yesterday evening
> because it meant he was stuck upstairs away from family, etc.
> Furthermore, it meant that we couldn't snuggle him during the night,
> which is what we most wanted to do.  His colour is a combination of
> yellow and dusky at the moment - we really don't know what is going on
> or how long we have with him, and that is the absolute hardest part of
> all of this.  We have been able to do a few of the things that were
> absolutely top on my priority list, though - we've been able to hold him
> alive, bring him home, take him for a walk with his sister in their
> double stroller, have pictures of him being held by all four
> grandparents, his sister, his parents and one of his uncles, we've done
> a family photograph outside our house on a beautiful sunny day, and have
> done several really nice photos of him on his own and with us.  We were
> also able to dedicate him at church this morning, which was really
> special for us.
>
> On top of everything else, I had been pumping breastmilk for Jeremiah
> until yesterday, but I have gotten a bad case on mastitis and simply
> cannot cope with being sick myself along with everything else, so we
> have had to switch to formula, and I am slowly getting over quite a bad
> fever and engorgement.
>
> We are both tired, we are both run-down, and this is very hard.  I am so
> thankful for the time we have with Jeremiah, but when he struggles with
> his breathing I am so torn.
>
> Thanks for thinking of us and praying for us - it is appreciated!
>
> Heather and Trevor
> parents of Kaitlyn Joy (23 months) and Jeremiah Edward (8 days old - t18)
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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