[tri-med] Re: JUSTIN UPDATE

Keeping Justin in my thoughts and that the doctors will find solutions real 
soon.

At 01:27 PM 25/05/2005 -0400, you wrote:
>Hi all,
>  Well, day 10 and Justin is still at the hospital,, and they still aren't 
> sure what is causing his problems. I have a few docs that aren't agreeing 
> on his hydrocephalus, so they are thinking that they are going to send 
> him to Duke university. They have an ND tube placed in his intestine to 
> feed him now,,, he is so malnourished from not eating,,, They said that 
> after the neurosurgeon gets done looking at him and deciding his care for 
> the uncontrollable fits, they will then send him back to the hospital 
> where he is at now so that his gastro doc can continue his care and try 
> to find out what is going on with his tummy. They flew my husband home 
> from Iraq, so thank god he is home now. Today is I guess you would call 
> my break away from there, even though, that is where I feel still am,,, 
> right next to him,,, but I know that he is in good hands with his daddy. 
> I thank you all for your heart felt wishes and prayers. I just hate it 
> that they have no clue what is going on in his littl
>  e body. I have 2 neurologists that are telling me he needs a shunt, and 
> a neuro surgeon that feels he doesn't and one doc telling me that he 
> can't do a simple scope test on Justin because if he does, he has to be 
> put asleep and they don't think he would come off of the vent right now 
> do to his present condition. I dunno,,, just please keep us in your 
> thoughts and prayers, as I think of you all every day.
>Thanks so much,
>Belinda  Mom to Justin t8 mosaic (1) and Destiny (7) Taylor (4) Jake (2) 
>and Dustin (1 and Justin's twin) and also wife to my adorable hubby Jason
>  http://www.babiesonline.com/babies/1/1shiningstar/
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

Jocelyn, Wife to Frank, Mother to Ian, Gillian and Susan
Nanna to Carly 18, Mathew 16, Ashleigh 15, Alex 13, and Tess 8 (Full T18)
Living in Richmond NSW, Australia 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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