[tri-med] Re: JUSTIN UPDATE

Justin and your family are in my thoughts and prayers!
 
Wendi and Jackson (partial trisomy 4p)
Jason and Belinda <JayandBel@xxxxxxxxx> wrote:
Hi all,
Well, day 10 and Justin is still at the hospital,, and they still aren't sure 
what is causing his problems. I have a few docs that aren't agreeing on his 
hydrocephalus, so they are thinking that they are going to send him to Duke 
university. They have an ND tube placed in his intestine to feed him now,,, he 
is so malnourished from not eating,,, They said that after the neurosurgeon 
gets done looking at him and deciding his care for the uncontrollable fits, 
they will then send him back to the hospital where he is at now so that his 
gastro doc can continue his care and try to find out what is going on with his 
tummy. They flew my husband home from Iraq, so thank god he is home now. Today 
is I guess you would call my break away from there, even though, that is where 
I feel still am,,, right next to him,,, but I know that he is in good hands 
with his daddy. I thank you all for your heart felt wishes and prayers. I just 
hate it that they have no clue what is going on in his littl
e body. I have 2 neurologists that are telling me he needs a shunt, and a neuro 
surgeon that feels he doesn't and one doc telling me that he can't do a simple 
scope test on Justin because if he does, he has to be put asleep and they don't 
think he would come off of the vent right now do to his present condition. I 
dunno,,, just please keep us in your thoughts and prayers, as I think of you 
all every day.
Thanks so much,
Belinda Mom to Justin t8 mosaic (1) and Destiny (7) Taylor (4) Jake (2) and 
Dustin (1 and Justin's twin) and also wife to my adorable hubby Jason
http://www.babiesonline.com/babies/1/1shiningstar/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line


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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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