[tri-med] Re: It was worse than I thought

(((Yazmin)))

It is so hard to see your baby so ill.  But remember, no matter what the
doctors say, God is in control of her life.  She is like everybody else:
she has a day she was born, and a day to die.  We know when the first is,
and nobody knows when the second is, even the doctors in their "infinite
wisdom".  Don't feel bad for crying, it's better to get it out than bottle
it up (coming from a seasoned bottler!).  I always found a good cry made me
stronger and more resolved afterwards, and helped me fight for what I
wanted.  Don't let them bully you--Kira is more than her diagnosis.  She is
a sweet little girl, and deserves everything you, as her momma, decide is
best for her.  I will be thinking of you a lot today, and praying for
strength for you.


Jennifer Vanderbeek
Boise, Idaho, USA
Mom to Arwen (10); Elanor (8), Trisomy 18; Caregiver to Joe (29), Cerebral
Palsy; and Wife to Andrew (I'm not telling how old he is because he's
younger than me!)

Check out Elanor's CaringBridge site at:

http://www.caringbridge.org/visit/elanoranne 



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Yazmin castro
Sent: Wednesday, March 19, 2008 11:52 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: It was worse than I thought

Thank you all for keeping Kira in your prayers. I am so happy I have other
moms (friends) with me at tough and happy times. Today in the morning when
the nurse told me what they had to do and when I got into a big argument
with one of the residents because my daughter was gagging and waking up and
they were hesitating on giving her sedation medicine, I felt so depressed I
went to the restroom and cried. The thing that really made me that way was
that I heard the doctors talking saying that she was very ill. I know she is
very sick but to just hear it from somebody else made it more real and I
just lost it. 
 
Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q, and
she loves to talk.


----- Original Message ----
From: jwaite <jwaite@xxxxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Wednesday, March 19, 2008 9:13:16 AM
Subject: [tri-med] Re: It was worse than I thought


----- Original Message ----- 
From: "Jennifer Vanderbeek" <Phil46@xxxxxxxxxxxx>
Elanor is in PICU with flu, and is also
> intubated.

Chicken soup thoughts winging along to Elanor. Wishing her a quick and 
complete recovery.
{{{{{Jennifer}}}}}

Michelle mom to Alex (20, partial trisomy 14 mosaic) and Molly (17)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                      www.trisomyonline.org
                  Families Helping Families On-line


 
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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