[tri-med] Re: It was worse than I thought

I can't tell you how many times I've argued with residents and cried in the
hospital.
You feel they don't listen and they don't give your child as much attention
or care that they would a typical child, so you are always very defensive of
your child.
You are lacking sleep, so everything is magnified and every little thing
either ticks you off or makes you cry.  Kinda like God makes you that way,
so you can really show emotion to the dr and get what you need in a very
demanding or emotional way that you typically wouldn't show.

Drs don't typically hide what they think, they say things that others
wouldn't about your child, in front of you.  It is a reality check, and
there is not getting around it as long as you are there.  I feel confident
that you will get through this, it is an exhausting process being in the
hospital.  When will she come off the vent?  How bad is her pneumonia?  How
bad are her levels?  Do they pop back up after they dip?

You and Kira are in our prayers.
Debbie and Claire (T18)

On Thu, Mar 20, 2008 at 1:51 AM, Yazmin castro <beaunkev@xxxxxxxxx> wrote:

> Thank you all for keeping Kira in your prayers. I am so happy I have other
> moms (friends) with me at tough and happy times. Today in the morning when
> the nurse told me what they had to do and when I got into a big argument
> with one of the residents because my daughter was gagging and waking up and
> they were hesitating on giving her sedation medicine, I felt so depressed I
> went to the restroom and cried. The thing that really made me that way was
> that I heard the doctors talking saying that she was very ill. I know she is
> very sick but to just hear it from somebody else made it more real and I
> just lost it.
>
> Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q,
> and she loves to talk.
>
>
> ----- Original Message ----
> From: jwaite <jwaite@xxxxxxxxxxxxx>
> To: tri-med@xxxxxxxxxxxxx
> Sent: Wednesday, March 19, 2008 9:13:16 AM
> Subject: [tri-med] Re: It was worse than I thought
>
>
> ----- Original Message -----
> From: "Jennifer Vanderbeek" <Phil46@xxxxxxxxxxxx>
> Elanor is in PICU with flu, and is also
> > intubated.
>
> Chicken soup thoughts winging along to Elanor. Wishing her a quick and
> complete recovery.
> {{{{{Jennifer}}}}}
>
> Michelle mom to Alex (20, partial trisomy 14 mosaic) and Molly (17)
> MichiganUSA
>
>                   Building ___ooOOoo__ Rainbows
>                      www.trisomyonline.org
>                  Families Helping Families On-line
>
>
>
>  
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>


-- 
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the
impossible!
If you want the rainbow, you gotta put up with the rain.
Patience and Persistence - keys to raising children.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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