[tri-med] Introducing Alyssa

Hi all, my name is Jessica and my daughter's name is Alyssa. She is 15 months 
and has t-18. She has several heart conditions, is fed by a g-tube, but is 
one of the happiest babies I know. The reason I am finally writing is because 
I need some help. Alyssa has had several UTI's lately and they just diagnosed 
her with a neurogenic bladder (she never fully empties her bladder). I was 
wondering if anyone has any experience in this area. The urologist and 
cardiologist have talked and the only real option that they say we have is 
for them to create a vesicostomy. In lame mans terms they want to make a hole 
in her bladder up to her skin so her bladder will constantly empty into her 
diaper through this whole. We just found out yesterday and the surgery is set 
for the 14th of Aug. I am just wondering if anyone knows anything that I need 
to be aware of. Well, Thanks in advance.

Love and prayers,
Jessica
Wife to Larry
Mom to CJ(5yrs) & Alyssa(T-18 & 15 months)
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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