[tri-med] Input on seizure meds please

Hi Everyone :o)
A dear friend of mine's little boy (Colton) who has T13.has started having
seizures. He's almost 2 years old now. He's on a vent at home and has been
doing very well. Hopefully he will be getting his heart repaired sometime
not too far off.which might mean no more vent :o)

I KNOW I've heard that there are some seizure meds not recommended for the
younger kids.but do not remember what they are??? Can anyone who has
experience with seizure meds email Barbara (Colton's grammy) at
lballard222@xxxxxxx and give her some input.good, bad or cautions would be
appreciated :o) Thanks in advance :o)

 

Love,

Penny...loving & devoted wife to Joe, the best husband in the world...mom to
Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in
general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
on our trisomy listserv at:

http://www.trisomyonline.org/victor.html      

AND...Devon's moment of glory in Exceptional Parent Magazine...

http://www.eparent.com/familiarfaces/ffaces_4_01.htm

AND...see our Trooper on FL Lab Rescue's website at:

http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm

AND http://web.coehs.siu.edu/Grants/TRIS/

"Those who matter don't judge me .... those who judge me don't matter."

 



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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