[tri-med] Re: Info on Neurologist Appointment Please!!!!

Irene,
Thank you for responding. I talked with Jackson's pediatrician over the 
weekend, he called to make sure he was feeling alright and I asked him 
exactly what the neurologist might be looking for and he said for too much 
fluid.
I'm so glad you told me about Carolyn and  that the surgery helped her. It 
helped me to not freak out so bad.
I'm sure I'll be posting again after this round of tests with a million more 
questions. thanks so much for the info.


----- Original Message ----- 
From: "Irene Smith" <irene67@xxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Tuesday, September 14, 2004 2:05 PM
Subject: [tri-med] Re: Info on Neurologist Appointment Please!!!!


> Jennifer,
>
> I am not sure if this is what they may be checking, but it could be
> hydrocephalus.  Caroline had an issue with head size during her early
> months.  Her head size was normal for her age, but her body was way below
> the charts.  She was also having issues with increased vomiting.  They did 
> a
> CT scan and discovered excessive fluid accumulating in her brain
> (hydrocephalus).  She had surgery to install a shunt to drain the fluid.
> That was at about 4 months old.  She has been back for checkups since and
> the shunt is still working perfectly.  I guess over time, it can clog or 
> get
> infected.  So far, so good.
>
> I probably wouldn't worry if I were you since Jackson's head size isn't
> excessively large for his body like my Caroline's was.  Also, he isn't
> having the vomiting issues that she had which is a definite sign of this
> problem.  They probably just want to be sure that fluid isn't starting to
> accumulate.  If you do happen to be faced with this issue, please know 
> from
> at least our perspective, it was one of the easiest issues we've had to 
> deal
> with so far!
>
> Also, it is great to hear he is developing so well!
>
> Irene
> (Christina - almost 3  y.o. and Caroline - 14 mo. with partial trisomy 
> 17p)
> http://www.babiesonline.com/babies/c/carolinerochelle
> ----- Original Message ----- 
> From: "Jennifer Hayes" <jennifer@xxxxxxxxxxxxxxxx>
> To: "TRI-MED" <tri-med@xxxxxxxxxxxxx>
> Sent: Tuesday, September 14, 2004 12:39 PM
> Subject: [tri-med] Info on Neurologist Appointment Please!!!!
>
>
>> Hello everyone, I haven't posted in awhile. At Jackson's 4 month 
>> check-up,
> his ped. recommended a neurologist follow-up. The first time he saw him, 
> he
> said that he wasn't concerned, that the only thing on the test showed 
> normal
> birth trauma. He saw no reason to follow-up. The reason the ped. gave was
> that his head is the normal circum. for a 4 month old, his body was a 
> little
> small. He said it wasn't even a big difference, but he'd like it checked
> just to be sure. Since they don't know what to expect with him. He has
> partial duplication 2p (13-21). My question to all of you is: What might
> they be checking for? Any and everything you all might know of, I would 
> much
> rather be prepared, than to walk in there knowing nothing and being told
> something awful. He seems to be doing great lately, besides AWFUL 
> congestion
> ALL the time, which makes it hard for him to eat at times(He has a swallow
> test and upper GI on the 22nd) . He's gaining weight, up to 11lbs 2oz.! He
> still sleeps more
>>   than I'd like , but is SO active when he's awake, starting to coo and
> make all kinds of noises other than cries, also smiling a lot and swatting
> at toys and eating his hands and trying to get his feet.
>> I would appreciate anything anyone could tell me.
>> Thanks!
>> Jennifer Hayes (mom to Chace 6, and Jackson 4 1/2 months, partial dup 2p
> (13-21)
>>                   Building ___ooOOoo__ Rainbows
>>                        www.trisomyonline.org
>>                   Families Helping Families On-line
>>
>>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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