I just thought I would answer the question about seizures..... You would know, I know it sounds silly but if your child is having them you know. Thereare many types of seizuers and they dont always involve whole body convulsions. They can be as simple as eye rolling, lip smacking, twitching onone side of the body...always followed by some sort of confused look, and uninterruptable. Aleah has done alot of body motions that make my heart race,thinking its a seizure the easiest way to find out is to touch her or say her name if she doenst stop then it could be a seizure. If she responds then its just "behavioral". I have met with nuerologists quiete a bit but I am assuming if your child has never had a seizure they will just look for head growth/size any abnormalities. Development, how they use there body, tracking with there eyes, things like that. They may talk to you about whatever assortments go with your child diagnoses ...... best of all they usually they dont poke them!!!!! and just talk with you and play with them. Hope this helps! Rachael mom to Jeremiah and Aleah dx Infantile Spasms resolved, focal partial seizures and partial trisomy 14 Rachael Larson>From: "Jennifer Hayes" <jennifer@xxxxxxxxxxxxxxxx> >Reply-To: tri-med@xxxxxxxxxxxxx >To: <tri-med@xxxxxxxxxxxxx> >Subject: [tri-med] Re: Info on Neurologist Appointment Please!!!! >Date: Tue, 21 Sep 2004 14:50:39 -0500 >>Pamela, >Thank-you for responding. What are some of thesymptoms of a seizure? And I >know I probably sound stupid, but why did Genevieve have the fused surture(I >really have no idea what that is)? I am wondering because every doctor >Jackson has seen has commented on his large soft spot, it starts pretty much >on his forehead in a v-shape and then widens on the top of his head and then >goes back to the back of his head some. So I was wondering if that had >anything to do with it. Forgive me if that is stupid question, I am trying >to learn about all of these surgeries and what each organ does and why and >what happens if something is not working right, but it gets confusing >sometimes. I am dreading the test tommorow, he can't eat after 9am and the >test isn't until one, here lately he has been eating about 51/2 to 6 oz >every three hours during the day, so Ireally hope he likes the barium! >----- Original Message ----- >From: "Pamela Padgett" <padgettcastle@xxxxxxxxx> >To: <tri-med@xxxxxxxxxxxxx> >Sent: Wednesday, September 15, 2004 12:08 PM >Subject: [tri-med] Re: Info onNeurologist Appointment Please!!!! >>>>>Building ___ooOOoo__ Rainbows >www.trisomyonline.org >Families Helping Families On-line > ---------------------------------------------------------------------------- Check out Election 2004 for up-to-date election news, plus voter tools and more![1] --- Links --- 1 http://g.msn.com/8HMBENUS/2746??PS=47575 Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line