[tri-med] Re: In the hospital... again.

Thinking of you guys and keeping you in our prayers....
Get well soon Little Hannah!
Debbie, mom to Baby Claire (full T18 and 16 months old)
http://www.debbwebb.com/Claire/



At 07:53 AM 7/27/2004, you wrote:

> >Yesterday Hannah had 5 "episodes" (the hardening of her abdoman, throwing
> >up if we didn't get the vent tube in fast enough, diarrhea) between 7 am
> >and about 9-9:30 am... We called the pediatrician to see if she would see
> >her so we could talk about starting to look at other options than just
> >saying "she might just do this."  (Including taking her to Vanderbilt for
> >a second opinion.) We went to therapy and the speech therapist commented
> >on how dry her mouth was. We also noticed that she wasn't acting like
> >herself. On the way to the doctor's office she got real wiggly in the
> >carseat (more so than normal.) When we got there I thought she felt a bit
> >warm so I took out my thermometer and took her temp. 100.6. They noticed
> >she wasn't looking like "normal" too (heck, theve seen her WAY more than
> >enough to know!) The doctor was going to run some tests, blood, urine,
> >throat culture, but told them to put her on a pulse/ox first. 83. So they
> >put her on O2 and even on 8 liters she only got up to 94-95. So guess
> >where we went and how we got there. Same ambulance driver, he recognized
> >us. On the trip over he told me he liked having me ride along, I'm
> >somewhat inteligent about what is going on and not panicy. And this was
> >even after, when he walked in the office, I looked up and said "I never
> >wanted to see you again!" :)) (I told him that again (after saying thanks)
> >when they were leaving the
> >hospital.
> >
>
>Hannah was down 9 ounces from last Wednesday and they were worried that she
>was getting dehydrated. They admitted her under the Hospital's physician
>group and will be calling in at least her GI and Pulmonary docs. Our doctor
>also mentioned to us to see if we can't get the MRI done as an in-patient
>so we're hoping for that. (We've mentioned it to the ER doc and the floor
>doc.) They put in an IV last night and stopped giving her anything even by
>g-tube as they were also concerned about aspiration. They did a chest x-ray
>in ER but it was ok. They are doing another one this morning. They also
>took a sample from her diaper as there is a bug that you can get after
>being on antibiotics a long time and she has been for months (with the
>accompanying diarrhea.)
>
>We have no idea how long this stay will be. In doing her history with the
>nurses we learned that this is hospitalization #8, not 7 as we thought.
>Just hope it's not another 10-11 days stay.
>
>I came home last night and will be heading to work in a few to do what I
>absolutely have to (someone else is coming in to cover the phones) then
>I'll be going to the hospital to let Donn come home and do his work. Our
>middle daughter is still visiting but she was sick when I got home so I
>assume she will be laying low today. Neither of the kids will be going to
>the hospital to see Hannah.
>
>
>Janet and Donnell King in East Tennessee
>Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - fourteen
>months old!!!
>Also Amanda, 21, Jon, 18, Zach, 15, and Caty, 12, who are all just as special.
>
>for updates on the family, including news on Hannah Emily, go to
>http://kinglynews.blogspot.com
>(latest update June 18th)
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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