[tri-med] Re: IEP

----- Original Message ----- 
From: "John and Ceci DeGenova" <jcdegenova@xxxxxxxxxxxxx>
 I also know someone who is involved in the medical
> community in Grand Rapids.  If you were interested, I could try to get
some
> info on some recommended professionals.  If you found you wanted to pursue
> this, we live 30 - 45 minutes from most points in Grand Rapids.  Our home
> would be open to you and Alex as a landing spot.

Wow Ceci! Thanks!

I'm going to start by investigating here again. It's been a few years.

Last time around though Jim 'poo pooed' the whole notion saying that he just
couldn't see how the testing was going to be valuable enough to warrent the
cost. I can just hear him with 'he only has 1 yr of school left'.......we've
not had a
rip-roaring fight in a while. :0)

> Is Molly going to Blue
> Lake again this summer?

Under discussion actually!
It may depend on the amount of the scholarship she earns.

We are trying to plan a vacation this year (it will have been 4 yrs this
summer since we've had one) to Washington DC.

Both kids will be involved in fall high school sports (neither of their
sport 'seasons' are slated to change even with the lawsuit the MHSAA has
going against the state).
Alex will have soccer camp in July and tryouts begin August.
Molly will have a swim 'camp' in July with tryouts in August.

Blue Lake is 12 days.
School ends June 9.
We're thinking of leaving for DC a few days after they get out. May plan a
swing down to Colonial Williamsburg and nearby Busch Park as well.
Nice thing about DC, pretty much everyplace you visit is FREE!!! Even
contacted Senators about tickets for tours that they offer.

> I know it's a long shot, but I'm trying to think outside of the box more
as
> I get older.  (I have a tendency to always do things the tried and true
way!
> Risk adverse all the way!)  Just thought I'd toss it out.

Thanks for 'tossing it out'!  I really appreciate it.

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (14)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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