[tri-med] Re: IEP

----- Original Message ----- 
From: "Catherine Trewin" <ctrewin@xxxxxxxxxxxx>

> Boy, if only I knew then what I know now...

There is a learning curve isn't there! lol

If this list (even the Internet) had been in existance when we started this
journey there are things I'd have done differently. It sure would have been
nice to have had the input.
But all in all.....things most often worked out for the best. While at times
the system sucked swamp water we were fortunate to have PEOPLE who really
were there for Alex, which made all the difference in the world.

> I am so glad that we are out of the IEP years!!!!

Won't be long and I'll be there......kinda scary to think about but I won't
miss the process!

developementally delayed means,
> according to those who had the ultimate power to deny such things, that
she
> was developing normally but at a very, very slow rate and would
eventually,
> without intervention, gain all of the skills the other children had!

In infancy and toddlerhood Alex had the 'dev delay' label (and at the same
time the 'failure to thrive' label) but we've not seen it applied to him in
years. Will keep a watch out for it though.

> I eventually fought for and got 6 months of speech therapy. Bec's
> frustration in trying to commicate with others is downright painful to
> watch, to see the hopeless look on her face and especially watching as
> anyone speaks to her she turns me to interpert her answer.

Another heart breaker..........
Glad you've got some speech therapy on tap. How's that going?

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (14)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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