[tri-med] Re: I need advice on seizures ....

gosh i wish i knew how to help.  kammie never had seizures or apneas.  this
is the right group to ask tho.
jude, mom to derek-16, kelsey-14 and
kameron-5-full trisomy 18
golden, colorado usa
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
----- Original Message -----
From: "Christine Nugent" <nugentmrs@xxxxxxxxx>
> I am new to this list.  I am the mom of a 2 month old
> little girl with full T-18. The doctor's told us she
> would last 1 week.  We have been home with Hospice
> support for 1 month.  Grace's seizures and
> accompanying apnea have increased over the last 2
> weeks.  I need advice on how some of you have managed
> seizures with your kids.  My pediatrician is trying
> phenobarbital (orally) at 1cc right now.  We went to
> get the blood levels checked today.  It seems as if
> the seizures are increasing.  I think she needs more
> pheno.  The Hospice doctor told me that sometimes at
> the "end of life" these seizures increase.


---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.391 / Virus Database: 222 - Release Date: 9/19/02

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: