[tri-med] Re: I don't even know what to name this subject line....

----- Original Message ----- 
From: "Penny Victor" <pvictor@xxxxxxxxxxxx>
So I said, "well...you DO know about using Thick it in all his liguids
because of his aspiration proble
>  m right???" She gives me a blank look...again chuckles and says "No".
This scared the bejeezus outta me. I show her the Thick it...the laminated
bright lemon yellow "Devon Do's and Don'ts" posters with detailed
instructions on what kinds of foods he can and cannot eat...drink...his
toileting needs, his limited vision...etc. Next I asked..."well where is his
PECS notebook...do you know what PECS are?"...her answer??? "No...I don't
know what a PECS notebook is...haven't seen one." OK...SO HOW HAS HE BEEN
ABLE TO COMMUNICATE HIS NEEDS TO YOU OR TO HIS FIRST TEACHER (who has no
experience with Multi kids either)???? ..I was very upset to find a wicked
nasty bruise in the shape of a hand print...fingers only...but you could
clearly see the digits of the fingers...as if he'd been grabbed VERY HARD
and PINCHED!!! I asked...and again...they have no >idea how it happened

Penny, I'm sitting here just stunned and the MULTITUDE of issues that poor
Devon has had to cope with. I just want to hug you both!!!!!!!

What makes this whole thing even more sad is that you know it's not an
isolated case. Abuse of those who are unable to help themselves is out
there. Often it goes unreported and unresolved (esp in nursing homes)
because of many reasons.

It's great that you've been documenting things (smart taking pictures!) and
are following through with this.

Hopefully Devon will soon love going to school again.

{{{{Penny}}}}

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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