[tri-med] Re: I am no more special than the next Mom!

----- Original Message -----
From: "joseph salter"
> b/c like me as a mother she
> felt stressed and overwhelmed with the responsibility of dealing with her
> children's issues 24/7, and even though our issues were different it was no
> less important to either of us.

Deb,
I want to say thank you for putting into words what I have always thought 
regarding this. All of our problems are relative. Not
better or worse, just different.

>> I guess because of that I do not feel like I deserve any special praise or
> that anyone should be in awe of me.

You sound like how I feel - embarassed. Its nice for folk to acknowledge what 
is going on in my life, to say well done, but I get
embarassed if there is too much carry on..........

>>  I only do what any of us would do if
> you all were in my shoes.

Ahhh but Deb there are many people who wouldn't or couldn't be able to do what 
you do, or who would choose not to do what you do for
various reasons.........
This is something I often forget until I get a dose of reality that slaps me in 
the face. At the moment I am helping a family off
list in a poorer Asian country. I am "talking" through their OT because they 
don't have a computer, or english, or resources. Even
basic reflux meds are hard for them to obtain......... But it doesn't have to 
be in overseas countries - the same happens here in
our own home towns. The 16 years olds, the single mums, sometimes no matter how 
much they may want to they can't...........

>>Although I must admit that it is nice to know
> that I do not walk alone and that I have friends and other moms who are
> fingertips away or a phone call away that I can bounce off of if I need to.

Amen to that!!!!!!!!!! We may not have the answers but it is sure nice to 
"think things through" with others who understand. I will
ever be grateful to you and Nanci who helped me research and resource the cause 
of Alex's problems. For being there when I needed to
cry after he had arrested, the hospitalisations, fights with the 
medico's.......... Mind you I am also soooo glad that those days
seemt to be behind us for the most part!!!!!

> I think we all need someone to take us on a vacation..of course if any of
> you are like me, I can't hardly stand to be away from my children.  Not b/c
> I worry about them, but b/c I find myself missing them terribly.
> We all deserve something special in my book...not just me!

Mmmmmm so who is going to win the lottery and take us on our list conference to 
Hawaii???? Babysitters vital as is the bar in the
pool :-))))) And absolutely no workshops or presentations on anything to do 
with Trisomy!!!!!!! Just facials, massages, saunas and
gorgeous guys serving the drinks :-))

The toughest thing about being a housewife is you have no place to stay home 
from.
- Patricia C. Beudoin

Keep Looking for Rainbows!!!
Karen, Mum to Alex (7, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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