[tri-med] Re: Hope gained her wings

Dear Meghan and family

We are so sorry to hear that Hope is no longer with us...but am very happy
to know that she is now in the arms of Jesus.  I know that will not help the
pain go away right now, but we will pray for you and your husband that God
will give you the peace that you need to go on.  Keep fighting for all of
the other children and adults...you will make a difference.  God has put you
here for a reason, maybe this is the reason to help someone else.

Tracy mom to Cody (T-9) 8years, Meagan 9years, Phil 23 years, Christine 26
years, mom in law to Marc 30years and proud grandma to Brayden 1 and a half
years...and wife to my wonderful husband and best friend Paul


----- Original Message ----- 
From: <Megoa22@xxxxxxx>
To: <tri-family@xxxxxxxxxxxxx>; <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, January 21, 2004 11:58 AM
Subject: [tri-med] Hope gained her wings


> Last Wednesday, January 14th Hope passed away at 8:00 in the morning.  She
> was in the hospital for pain management.  Her little body just couldn't
handle
> it anymore,  The seizures were getting worse even when we went up in the
meds,
> she was refluxing even on continuous feeds - it just wasn't fair to her to
> keep her with us.  We worked with a palliative care/hopsice dr at the
hospital
> who was wonderful and we started her on morphine regularly.  for the first
time
> in a long time I finally saw my little girl at peace.  I spent the night
in
> the hospital with her and held in in my bed.  My husband came over and
held her
> and we knew she was struggling and that it was close.  We just didn't
expect
> it to be so soon.  A few hours later she passed away.  I am struggling but
I
> know that she is comfortable,  The last two months were horrible for her
and she
> just seemed to be in constant pain.  I am so grateful for this website and
> all the support, advice and information that was provided to me.  I am
going to
> continue to fight for pediatric hospice care in DC since it doesn't exsist
and
> fight our insurnace - ironically the day Hope died we recieved a response
> from them denying hospice care - saying she wasn't terminally ill!
> Thank you all
> Meghan (Mom to Hope, Full T13 6/18/03-1/14/04)
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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