[tri-med] Re: Hope gained her wings

Oh, Meghan,
My heart breaks for you.  There are no words to comfort you right now, but 
please know that you are in our prayers.  You have a great outlook.  You know 
it was for the best.  That, however, will not keep the tears away.  Feel the 
emptiness, it's OK.  We are here for you.


Sherry
Wife to Kevin
Mommy to Hunter (4) and Audrey Grace (14 weeks)

1 Thessalonians 5: 16-18 "Be joyful always, pray continually; give thanks in 
all circumstances, for this is God's will for you in Christ Jesus.

----- Original Message ----- 
From: <Megoa22@xxxxxxx>
To: <tri-family@xxxxxxxxxxxxx>; <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, January 21, 2004 11:58 AM
Subject: [tri-med] Hope gained her wings


> Last Wednesday, January 14th Hope passed away at 8:00 in the morning.  She 
> was in the hospital for pain management.  Her little body just couldn't 
> handle 
> it anymore,  The seizures were getting worse even when we went up in the 
> meds, 
> she was refluxing even on continuous feeds - it just wasn't fair to her to 
> keep her with us.  We worked with a palliative care/hopsice dr at the 
> hospital 
> who was wonderful and we started her on morphine regularly.  for the first 
> time 
> in a long time I finally saw my little girl at peace.  I spent the night in 
> the hospital with her and held in in my bed.  My husband came over and held 
> her 
> and we knew she was struggling and that it was close.  We just didn't expect 
> it to be so soon.  A few hours later she passed away.  I am struggling but I 
> know that she is comfortable,  The last two months were horrible for her and 
> she 
> just seemed to be in constant pain.  I am so grateful for this website and 
> all the support, advice and information that was provided to me.  I am going 
> to 
> continue to fight for pediatric hospice care in DC since it doesn't exsist 
> and 
> fight our insurnace - ironically the day Hope died we recieved a response 
> from them denying hospice care - saying she wasn't terminally ill!
> Thank you all
> Meghan (Mom to Hope, Full T13 6/18/03-1/14/04)
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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