[tri-med] Home schooling ...Trisha

We had to get a letter from both his Cardiologist and Pediatrician stating
that it would be devastating for him to get sick with his heart condition.
It was presented in the initial meeting with the schools system. I really
had no problem with this as it is so obvious that he is fragile. We live in
California.

Hope this is helpful,

Ruth, wife to Rudy, mom to Brendon (19), Scott (17), Joshua (13), Matthew
Rudy
(Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
http://members.cox.net/t18mom

Lord as I face each new day, grant me power, perseverance, patience and
peace.

> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Trisha
> Thompson-Willingham
> Sent: Thursday, February 24, 2005 5:05 PM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: chronic sorrow/recurrent grief...Mieko in
> hospital
>
>
> Ruth
>
> How did the homeschooling come about?  We are in the same
> situation here...but Esprit is a little bit younger so I haven't
> crossed the road yet where I need to try to get services at home
> after she is 3.... I'm wondering how I go about it - with the
> biggest likelihood of success.  What state do you live in?
>
> Trisha ( Mom to Esprit T18 - born 4/11/03)
>
> -----Original Message-----
> From: Ruth <t18mom@xxxxxxx>
> Sent: Feb 24, 2005 8:30 AM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: chronic sorrow/recurrent grief...Mieko in hospital
>
> Maya,
>
> Sorry to hear that Mieko is in the hospital. Sending prayers your way for
> her to have a speedy recovery.
>
> It is such a difficult thing to always be so concerned what our kids are
> exposed to. I had a therapist the other day say to me when she was at my
> house for therapy, "I'm going to wash my hands because I'm
> feeling a little
> under the weather." Now, I should have said that I'd rather not
> have had her
> come in if she felt that way but I didn't and I think Matthew has a little
> cold again. With his heart condition this is never a good thing. The funny
> thing is that Matthew is home schooled exclusively because of his poor
> immune system and she knows that because it was specifically addressed at
> his I.E.P. I guess we shouldn't beat ourselves up too much...but I still
> find it hard.
>
> Hang in there,
>
> Ruth, wife to Rudy, mom to Brendon (19), Scott (17), Joshua (13), Matthew
> Rudy
> (Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
> http://members.cox.net/t18mom
>
> Lord as I face each new day, grant me power, perseverance, patience and
> peace.
>
> > Thanks for the pep talk Michelle. Mieko is in the hospital again
> > with some kind of respiratory virus, so I'm feeling a little low.
> > She's a trooper. She's improving, though she still needs oxygen
> > and has horrible sounding congestion.  I know we're very lucky
> > she's done so well.  Sometimes we forget how vulnerable she is
> > and now I'm kicking myself for exposing her to all sorts of
> > people last week.
> >
> > How do you deal with minimizing illness for your kids? I know
> > it's impossible to keep them from getting sick at all, but it's
> > so frustrating to know even a cold could land your child in the
> > hospital or even worse.
> >
> > I'm sorry to hear other kids like Aleah are sick as well. Sending
> > positive thoughts her way as well.
> >
> > Maya
> > Mom to Mieko 3/09/04 T18
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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