[tri-med] Re: Help needed

I don't have any knowledge of malrotation, but would think it would 
HAVE to be fixed eventually for the wellbeing of the child. As for 
the sleep apnea, wouldn't this be closely monitored while the 
operation was in progress. Obstructive apnea can be fixed in some 
cases if the problem is enlarged adenoids. Tess has had two 
operations to remove her adenoids. (Yes they can grow back).

At 01:38 AM 30/06/2006, you wrote:
>Hello...the following question is from a wonderful nurse that is taking  care
>of a baby with a trisomy syndrome. She takes baby home whenever she has 4
>days off in a row!! Bio Mom is very depressed and cannot make any 
>decisions at
>this time.
>
>Hope someone on our list can help.  Baby has malrotated bowels and  central &
>obstructive sleep anpnea .Doctors say she probably won't survive  the surgery
>for the bowels...due to the apnea
>Here is her question....
>
>
>
>
>
>The decision is ultimately up to her mom but I thought if I could find  out
>more about it I could give her that info to help her decide. Have 
>you had  any
>experience with the bowel surgery or the sleep apnea or know of anyone who
>has? If so I would appreciate any input.
>
>
>
>Thanks in advance,
>Laurie
>Mom to Brianna w/t9p
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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