[tri-med] Help needed

Hello...the following question is from a wonderful nurse that is taking  care 
of a baby with a trisomy syndrome. She takes baby home whenever she has 4  
days off in a row!! Bio Mom is very depressed and cannot make any decisions at  
this time. 
 
Hope someone on our list can help.  Baby has malrotated bowels and  central & 
obstructive sleep anpnea .Doctors say she probably won't survive  the surgery 
for the bowels...due to the apnea
Here is her question....
 
 
 
 
 
The decision is ultimately up to her mom but I thought if I could find  out 
more about it I could give her that info to help her decide. Have you had  any 
experience with the bowel surgery or the sleep apnea or know of anyone who  
has? If so I would appreciate any input. 
 
 
 
Thanks in advance,
Laurie
Mom to Brianna w/t9p


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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