[tri-med] Re: Help: Seizure/Long Chain Fatty Acid Question

>> whether or not I know of anyone who's syndrome child with seizures
>> is successfully taking the long chain fatty acid supplements.
>
>I don't know anyone who is taking them for epilepsy but my understanding of 
>the research into fatty acids and epilepsy is that it has nothing to do with 
>myelination but rather that the FA's increase the seizure threshold in 
>conjunction with medications. (FA's are used in the membranes of cells and 
>thats possibly how they work)

Thanks Karen, knew I could count on you to know at least the base line info
on any subject dealing with FA's.  And no, she's not really thinking of cureing
the epilepsy with them, it's really more of a "gee this would be nice to try 
for 
the known myelination problem, but is it safe with epilepsy?"
 
>I hope thats of some help in pointing them in the right direction.........

Thanks again, and would it be okay if I fwd'd your response to the CDO
listserv?  I know you use to be on there, but haven't seen you pop up
again since they gave up on their social experiment of secregating the list
between younger & older kids.  A miserable failure in that the younger
ones lost out on all the hard earned knowledge of the older ones.  But 
even worse, the older kids list frequently fell into months long silences,
and there was NO comradery.


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya), 
Philina's Pharm Bengal Cattery, Escondido, CA USA
http://home.mindspring.com/~fawna33/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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