[tri-med] Re: Help: Seizure/Long Chain Fatty Acid Question

----- Original Message ----- 
From: "Fawna"
> whether or not I know of anyone who's syndrome child with seizures
> is successfully taking the long chain fatty acid supplements.

I don't know anyone who is taking them for epilepsy but my understanding of 
the research into fatty acids and epilepsy is that it has nothing to do with 
myelination but rather that the FA's increase the seizure threshold in 
conjunction with medications. (FA's are used in the membranes of cells and 
thats possibly how they work)

The research at the moment is limited, its only been done on animals and a 
small adult sample, but the results so far look good that FA's decrease the 
frequency and severity of seizures when taken in conjunction with epilepsy 
medications. I have no idea what FA's they were using (remember there are a 
few) or in what quantities but most medico's focus on 3 and 6. I personally 
use a combination of 3, 6 and 9 with Alex but thats not for seizures but 
dyspraxia. The amounts would have been listed in the journal article that 
published the results I would imagine if the family can get access to it. I 
personally have only skimmed this area because epilepsy is not something 
that we deal with (always thankful for our blessings)

A study with children is underway but they only started enrolling children a 
year or so ago so it will be a while till we see the results in the 
literature I would imagine. The study was being done at Massachusetts 
General Hospital by the team that specialise in the keto diet. I am sure 
that there is information out there about the study. I would suggest that 
the family keep an eye on the Cure Epilepsy website or the International 
League Against Epilepsy for the results when they become available.

I hope thats of some help in pointing them in the right direction.........

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (11 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: