[tri-med] Help: Seizure/Long Chain Fatty Acid Question

I got asked a question on another rare chromosomal listserv regarding 
whether or not I know of anyone who's syndrome child with seizures 
is successfully taking the long chain fatty acid supplements. The child in 
question is actually a 9p deletion, with a know myelination problem in his
"posterior supra-ventricular white matter", but well you know how these 
things ALL seem to cross over the actual dx's.  Please see Emily's question
below....

>You've mentioned using fatty acid supplements, do you know anyone 
>using them with epilepsy without any adverse effects?  
>
>I've tended to shy away from using them as I've read/heard from some 
>that these could inrease the seizures although your explanation does 
>make sense in that it would help build the sheath and thus decrease 
>on nerve messages going astray and with my little knowledge of this, 
>I'd imagine it would decrease the short circuiting, therefore 
>reduced seizures.
>
>Thank you for giving me some hope that supplementing with the fatty 
>acids can make that difference (even if it is little) because again 
>the doctors here said it would not help supplementing.  I'm happy 
>for you that you have noticed some good on it with Philina.


Fawna, mom to Philina 23 yrs (PT6p & Moya Moya), 
Philina's Pharm Bengal Cattery, Escondido, CA USA
http://home.mindspring.com/~fawna33/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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