[tri-med] Re: Hello?....hello? hello......

>Waiting to hear about medical updates on all those 
>going through tests, etc.

Jackie, 

Guess this is why I don't write in much lately.  We 
aren't scheduled for any tests....surgery...etc.

Life is pretty good.  Philina spent last weekend at
respite camp with Nan's Allie.  They had a blast.
Philina hadn't been to camp since June '01, because
of her heart surgery the following Dec, and the 
problems that followed that.  Nice to finally have 
her back in the respite system.  She went all weekend
without using her g-tube too.  Amazing how good she 
eats orally when the tube isn't an option.

We are in the process of trying to get her some new
hearing aids though under her damage/loss insurance.
They disappeared when we evacuated for the fire, and
just haven't been seen since.

Other than that the only real trisomy news is TRIS 
Project related.  We're currently getting our ducks 
in a row for a grant application (start up funding 
for the pilot).  

Fawna, mom to Thom & Rhonda, Lara and
Philina 20 (PT6p & Moya Moya Syndrome),
wife of Doug, 12 >^..^<, 3 llamas, 2 tortoises,
& 1 turtle, Philina's Pharm Bengal Cattery
Escondido, CA., USA
http://home.mindspring.com/~fawna33/index.html







                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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