Hi Callie and welcome to the list. We live in Miami, Florida and have a 17 = month old daughter with full T18. We did not know this before birth and was= a big shock to us. When we met the geneticist for the first time she was n= ot much help other than saying that no one knows what cause children to hav= e this syndrome. She added that life expectancy is very low and gave our da= ughter, as did other doctors, no more that a year to live. She made it cle= ar that there will be no need for us to see her any more. She simply said t= here is nothing she can do for our daughter. =20 Nejoud is now a thriving 17 and =C2=BD months girl and doing very well. She= just started a special needs school and gets all her therapies their. She= continues to improve and we have a very optimistic outlook on her developm= ent. =20 You are welcome to come and visit if you are ever in Miami.... Mohammed (Dad), Rana (Mom), Nejoud (T-18, 17 1/2-months old) and BIG brothe= r Hamzeh (2Y-yrs and 9-months old) -----Original Message----- >From: mcmuni@xxxxxxxxxxxxx >Sent: Sep 17, 2007 9:15 PM >To: tri-med@xxxxxxxxxxxxx >Subject: [tri-med] Re: Hello > >Penny, I'm so sorry I got your two boys confused! I must admit that I am = having trouble keeping all the new names and stories straight! I imagine i= n a short time you all will become so familiar to me that you will be like = a second family. My apologies again!=20 >We saw our pediatrician today for Maiya's 6mo check up and discussed our e= xperience with the geneticist. She is going to do some research for us and= recommend another one. It will be interesting to see if she comes up with= the group at Shands where you guys go. =20 > >Take Care, >Callie > >Mom to Cade 5yrs and Maiya T8M 6 months >Sebastian, FL >-------------- Original message from "Penny Victor" < ________________________________________ PeoplePC Online A better way to Internet http://www.peoplepc.com Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line