[tri-med] Re: Heart defects....Stephen

It must be such a difficult time for you. Sending prayers your way!

Ruth, wife to Rudy, mom to Brendon (19), Scott (16), Joshua (13), Matthew
Rudy
(Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
http://members.cox.net/t18mom

Lord as I face each new day, grant me power, perseverance, patience and
peace.

> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Gary Comparetto
> Sent: Wednesday, January 26, 2005 5:33 AM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Heart defects....
>
>
> Hi Rose,
> My wife Elizabeth and I have a baby boy, Stephen, who was born
> October 5, 2004
> with T13 mosaic.
>
> I am currently writing this e-mail from Children's Hospital in
> Washington DC
> where Stephen just had surgery yesterday to repair his VSD - it
> was 14mm.  The
> surgery went very well - he's currently having a little difficulty with
> irregular heart beat but they have a temporary external pace
> maker attached and
> this is correcting the irregularity. He came off of the heart and
> lung machine
> fine but developed the irregular heart beat afterwards. We are
> hopeful that
> Stephen will recover completely - the next day or two are
> important for him as
> they hope to take him off of the ventilator.
>
> Elizabeth and I also wrestled with the decision to go through
> with the surgery
> in the weeks prior to it.  We decided to go through with it based on the
> Doctor's recommendation and the fact that there were visible
> signs that the VSD
> was effecting Stephen (his oral intake was decreasing and he was
> getting more
> easily tired among other things).
>
> We will pray that the Good Lord would provide you wisdom and
> discernment in
> your decision regarding Becca.
>
> Gary (and Elizabeth)
> Phillipians 4:6-7
>
>
>
> R Carey wrote:
>
> > We are having a meeting with the doctors & cardiologist
> tomorrow afternoon
> > @ 3:00.  They are giving us the option to either bring Becca
> home and spend
> > as much time with her as we can or they can try to repair her
> heart defects
> > (PDA & VSD) which she may or may not make it through the surgery.  Our
> > meeting tomorrow will be discussing everything, trying to
> decide whats best
> > for Becca.  Please keep us in your prayers.
> >
> > ~Rose
> >                   Building ___ooOOoo__ Rainbows
> >                        www.trisomyonline.org
> >                   Families Helping Families On-line
>
>
> -- Binary/unsupported file stripped by Ecartis --
> -- Type: text/x-vcard
> -- File: garycomp.vcf
> -- Desc: Card for Gary Comparetto
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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